Home / Be The Change / Baby Taken Off Hospice After Being Given Cannabis Oil – Now the Govt is Taking it Away From Her

Baby Taken Off Hospice After Being Given Cannabis Oil – Now the Govt is Taking it Away From Her


Last year, Meagan and Brandon Holt’s daughter Maddie, who suffers from a rare and debilitating disease called Zellweger Syndrome, was given only a short time to live, and her family was forced to do what no family can ever imagine – put a 2-year-old in Hospice care.

Maddie is deaf and blind, and entirely dependent upon round the clock medical care. Prior to being placed in Hospice care, Maddie developed life-threatening horrific seizures which sent her health into a downward spiral.

For months, the family administered several prescriptions that were intended to help Maddie. However, none of them seemed to work and, in fact, had a negative impact on her health.

After months of watching Maddie’s health deteriorate, doctors had no more options, and her parents were preparing to say goodbye. Maddie was going to spend her last days alive on life support in a hospital bed.

But then something amazing happened. Meagan began researching the effects of cannabis on intractable, or untreatable epilepsy.

She found one last hope, cannabis.

Being in Washington state, where medical and recreational marijuana is legal, Meagan got authorization, and then a beautiful group of people began donating whole plant cannabis extract to their family.

From the first dose, Meagan says, they immediately noticed a positive shift in her health. Maddie’s health improved exponentially, and within days “she was off hospice, on palliative care, and working towards recovering from a rough year.”

“Without cannabis, she would be a vegetable, or worse, dead,” explained Meagan Tuesday, to the House Commerce and Gaming Committee.

But all this hope would quickly be brought to an end thanks to a law that makes it illegal for growers to share cannabis with families like Meagan and Maddie who need this powerful medicine.

But, Meagan, Brandon, and Maddie are fighters and Meagan has been pushing for legislative action, HB 2629, to reverse this ridiculous law.

During the Committee hearing on Tuesday, Meagan took to the podium to deliver a moving speech.

“This Bill is needed, so families like ours, who are in a situation no one should be in, can legally accept donations of a very expensive medication.

I want to read a quote that left me with a very heavy heart. ‘This is the last harvest of cannatonic for the children. This grow is no longer legal, so I can no longer donate healing medicine, at no charge, to the parents of children, whom doctors have told to go to Hospice and die. I have never had a harvest for the children that made me sad beyond measure. It will be processed into oil in under five weeks and distributed in two. What will the medically abandoned children and their parents do then?’

If it weren’t for the generosity of the members of the cannabis community, we would not have been able to treat her. This Bill would allow me to be legally given life-sustaining medicine for my child. It would allow home growing of cannabis, which, in turn, could be processed and given to the patients that need it the most.

I do not see anything wrong with sharing quality medicine. Being able to grow and share a plant seems reasonable. Please approve House Bill 2629, so me and my child are no longer criminals.

Michael Scott is a close friend of the family, activist, and person responsible for putting together the moving video below. When speaking with the Free Thought Project, Scott said “It’s so very sad that these kind, loving folks are having to fight for the right to help their daughter and heal her. We’ve watched as Maddie has begun to heal. The damages Maddie suffers from now are from the medications the doctors gave her! Maddie is going through withdraws… it’s not right, not right at all.”

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When the Free Thought Project reached out to Meagan for a statement, she replied with the following powerful words,

The most important thing out of all of this that I want the legislators and really the government as whole, to realize is that this is more than just being allowed to share and grow cannabis. This is about the right to treat my daughter with a natural medicine.

How can it be ok to want to over medicate our children? Why should a child who is on hospice suffering from a terminal disease, not be allowed to chose to use a healing plant that allows them to enjoy their final days?

Cannabis allows my child to be herself. It allows her to enjoy the world while she is here. I can’t say for certain that cannabis will treat her Zellweger Syndrome. I still wake up to the reality that my child has already exceeded her life expectancy and every day could be our last. But what I do know is that with whole plant extract oil she is comfortable, coherent, and able to enjoy the little things, like a walk outside or play time with her sister.

The federal government needs to stop criminalizing innocent people for a plant. I am doing what any good parent would do and doing what is best for my child’s quality of life.

On Tuesday, the House Committee hosted an open forum and are deciding whether or not this Bill will move forward.

The family is asking that everyone contact the committee members and voice your support of this Bill.

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The e-mail addresses for all the representatives in the Commerce & Gaming Committee are below:

  • [email protected]
  • [email protected]
  • [email protected]
  • [email protected]
  • [email protected]
  • [email protected]
  • [email protected]
  • [email protected]
  • [email protected]

The time for action is now.

The annual meeting of the American Epilepsy Society took place in early December, where the largest study presented there confirmed the astounding benefits of medical cannabis to treat seizures.

Epilepsy affects one in 26 Americans during their lifetime, “with one-third having a form of the condition that resists treatment or effective management,” such as Maddie’s.

The findings of this study add to the growing body of evidence that cannabidiol (CBD), a non-psychoactive extract of cannabis, can provide the best option for intractable epilepsy.

Of 261 patients given CBD treatment, 45% experienced a significant reduction in seizure frequency, and 9% were seizure-free at 3 months. Some children continued to experience benefits after the trial ended, even one year after.

In the subsequent periods, which are very encouraging, 9 percent of all patients and 13 percent of those with Dravet Syndrome epilepsy were seizure-free. Many have never been seizure-free before,said lead author Dr. Orrin Devinsky.

The Free Thought Project has covered many stories of CBD providing miraculous benefits to children suffering from treatment-resistant epileptic seizures. With scientific evidence piling up, it is no longer deniable that cannabis provides a host of medical treatments.

Even in spite of cannabis prohibition, politicians are starting to break the law to provide people with cannabis. Rep. Allen Peake, a Georgia lawmaker, admitted that he defies unjust cannabis prohibition by bringing medical cannabis into Georgia from states where it is legal, such as Colorado. He recently delivered medical cannabis to a mother whose son suffers from seizures.

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The times are changing, and those who continue to throw people in cages or kill them for possessing a plant are being exposed for the vile tyrants they are.

Matt Agorist is an honorably discharged veteran of the USMC and former intelligence operator directly tasked by the NSA. This prior experience gives him unique insight into the world of government corruption and the American police state. Agorist has been an independent journalist for over a decade and has been featured on mainstream networks around the world.

  • Help us make this story viral! It may just help save this child’s life. (Y) + Comment + Share this story with your friends and family.

    • moneey!!!

    • They don’t care about kids…

    • That is precisely why, goverment is the puppet of the pharmaceuticals and hospitals, cannabis = no profit for them. That is why is illegal.

    • By the way, there’s no “SHARE” option in your sub-posts.

    • Leroy Shipp They don’t care about anybody

  • my fatheer used to say,,’even a fish wouldn’t get caught if he kept his mouth shut>”

  • Statism. Your kid needs to DIE because you dare to try something non-conventional. Even if that treatment might be the ONLY thing that saves them.

  • the human culling begins with your sick kids…your gov’t is beginning the culling and can’t have something that actually helps people live…stand up north americans..this is your world too..save your kids.

  • move

  • Move away from the state you are in.

    • They are in a LEGAL state. Read the article.

    • Yes because it’s that easy to pack up a dying kid, and just move right?

    • Is it easier to watch your child die, than move to someplace you can get the necessary medical your child needs?

    • Charles Cross Your right, what state do you live in. Is it legal there? If so do they grow, process, and provide this life saving medicine? DO you know how cannabis oil works for such a syndrome? Do you have

  • its ok for osborne to shove coke up his nose and fuck all is done about it,they dont want this because the big pharmas will lose out on making us pay for the shit they produce.xxx

  • Fuck the gov’t!

  • if momma sees this hmu ill get u what is needed free

  • This yet another example of how government serves no useful human purpose. Unless you believe oppression, extortion, and butchery are useful to humans.

  • We the people have allowed the federal government to assume too much power, all of the federal agencies are unconstitutional and must be abolished.

    • That is just insane

    • No it’s not Brandy Maitland, but for the sake of entertainment, why do you feel it’s “insane”? Is it because you feel you cannot survive without governmental control?

    • the biggest problem with federal agencies is the disproportionate influence exerted on them by vested interests ; the same interests that have even more influence over local governments

      do you think local governments will resist temptation and intimidation better the federal government?

      advocating to abolish our protections is advocating for our abuse. what must be fixed can be fixed without throwing ourselves to the wolves.

    • The fact is that the Constitution does not provide for any of the federal agencies existence. Over the years we the people have allowed the federal government to assume too much control.

    • Without government agencies it could be left to a panel of free civilians. With FULL TRANSPARENCY, as in NOTHING passes unless EVERY detail is explained to the public. Slower process? Yes. Easier to prevent corrupt and devious laws? Yes. You have to understand, we as a people are more than capable of doing what these scumbags do, without lobbyist, biased opinions, etc.

    • our government was designed to be a “panel of citizens”, and it could be ; it is our lack of participation that turned government by the people over to zealots and parasites

      we have environmental protections, consumer protections and resource management agencies for a reason, to protect the public’s interests and property

    • Key word, “designed”, but the reality is it’s far from what it was intended. And that needs to change, if that means a full reboot, which is what it will take at this point. Then that’s what needs to be done.

    • even a “complete reboot” would not fix our lack of participation or corruption by vested interests ; at best it eases the transfer of power to other vested interests

      like it or not, (all of) We the People really are our greatest asset and best hope

    • Yes exactly. The problem is the people are already too dumbed down and indoctrinated into this awful system..

    • We must do all we can to educate others.

  • “Even in spite of cannabis prohibition, politicians are starting to break the law to provide people with cannabis. Rep. Allen Peake, a Georgia lawmaker, admitted that he defies unjust cannabis prohibition by bringing medical cannabis into Georgia from states where it is legal, such as Colorado. He recently delivered medical cannabis to a mother whose son suffers from seizures.

  • It’s time for TOTAL WAR against governments …..

  • Psychopaths without empathy!

  • I think it’s time for the revolution.

  • I’m not a fan of people thinking I should suffer because they’ve outlawed a plant either.

  • the real drug war should be against the drug companies. they don’t want to cure anything. no money in cures

  • Thank you for sharing our story! We hope we can change this, the Legislators need to step and help us with Positive Change!!!

  • Please share our video too!!!

  • It’s time to end the failed war on the citizens (drugs)

  • Even with legalization there is prohibition against a plant. They will never understand cannabis until they try it. Everyone who has enjoyed the effects of marijuana has said ” this stuff should be free”

  • Patty Jo… This is sad

  • Dirty bastard’s

  • Break laws that are useless, as you see fit, to protect yourself and your family from sheer Government stupidity and corruption – from the politicians to the judicial system to law enforcement. They are bought by corporations and can no longer be trusted.

  • Rules and regulations are for people that don’t know what to do. Also, there is not one single species out there that feels the need to give any explanations on how they decide to survive.

  • Do you think Trump or Cruz or Bernie or Hellary or any of the rest of those bastards will change this? No? Me neither. Now tell me again why your candidate is the best?

    • Seeing as Bernie is pro cannabis I can see him trying to even bring hemp back

  • I don’t like pot but this level of fecking stupidity pisses me off. If it is an actual medicine that gives the person the ability to live some of their lives without pain, then my message to all regulatory agencies with big-assed noses: BUTT. THE FUCK. OUT!!

  • the so call Government messes up more stuff every time they touch something

  • …..

  • not right

  • Repugs will never pass that..just use jesus..that works every time right

  • Jennifer Lee

  • Until people rise up nothing will change! Elitists will continue to rape the land as we give power to people with obsessions that have no connections to the reality around them but just like to play games, subjecting people to the same terms. That in itself is one of the reason this world is so fucked. WE are a society of conditioning where people can be crafted into a position against their true beliefs and most of that is ran through control of monopolies. In a sense when a person does not question and blindly aids the evil, they are taking apart in that evil.

  • It sucks what if one of their children god 4bid needed it. What would they do

  • yes!…I had a Boy who had water on the brain>lived to be 8 and the swine flu killed him….he had somany grand mal seizures……smh